Short title
Short title. This Act may be cited as the Pediatric Palliative Care Act. (Source: P.A. 96-1078, eff. 7-16-10.)
Illinois · statute · 305 ILCS 60 · 14 active provisions
Short title. This Act may be cited as the Pediatric Palliative Care Act. (Source: P.A. 96-1078, eff. 7-16-10.)
Legislative findings. The General Assembly finds as follows: (1) Each year, approximately 1,500 Illinois children are diagnosed with a serious illness. (2) There are many barriers to the provision of pediatric palliative services, the most significant of which include the following: (i) challenges in predicting life ex…
Definitions. In this Act: "Department" means the Department of Healthcare and Family Services. "Palliative care" means care focused on expert assessment and management of pain and other symptoms, assessment and support of caregiver needs, and coordination of care. Palliative care attends to the physical, functional, ps…
Pediatric palliative care program. The Department shall develop a pediatric palliative care program, and the medical assistance program established under Article V of the Illinois Public Aid Code shall cover community-based pediatric palliative care from a trained interdisciplinary team, as an added benefit under which…
Federal waiver or State Plan amendment. If applicable, the Department shall submit the necessary application to the federal Centers for Medicare and Medicaid Services for a waiver or State Plan amendment to implement the program described in this Act. After federal approval is secured, the Department shall implement th…
Qualifying child. (a) For the purposes of this Act, a qualifying child is a person under 21 years of age who is enrolled in the medical assistance program under Article V of the Illinois Public Aid Code and is diagnosed by the child's primary physician or specialist as suffering from a serious illness, as defined in su…
Authorized providers. Providers authorized to deliver services under the program shall include licensed hospice agencies or home health agencies licensed to provide hospice care or entities with demonstrated expertise in pediatric palliative care and will be subject to further criteria developed by the Department, in c…
Interdisciplinary team; services. Subject to federal approval for matching funds, the reimbursable services offered under the program shall be provided by an interdisciplinary team, operating under the direction of a program medical director, and shall include, but not be limited to, the following: (1) Nursing for pain…
Medical assistance program standards for pediatric palliative care services. The Department, in consultation with interested stakeholders, shall establish standards for the provision of pediatric palliative care services under the medical assistance program under Article V of the Illinois Public Aid Code. The Departmen…
Administration. (a) The Department shall oversee the administration of the program. The Department, in consultation with interested stakeholders, shall determine the appropriate process for review of referrals and enrollment of qualifying children. (b) The Department shall appoint an individual or entity to serve as pr…
Report. After the program has been in place for 3 years, the Department shall prepare a report for the General Assembly concerning the program's outcomes effectiveness and shall also make recommendations for program improvement, including, but not limited to, the appropriateness of those serious illnesses that render a…
Effect on medical assistance program. (a) Nothing in this Act shall be construed so as to result in the elimination or reduction of any benefits or services covered under the medical assistance program under Article V of the Illinois Public Aid Code. (b) This Act does not affect an individual's eligibility to receive,…
(Amendatory provisions; text omitted). (Source: P.A. 96-1078, eff. 7-16-10; text omitted.)
Effective date. This Act takes effect upon becoming law. (Source: P.A. 96-1078, eff. 7-16-10.)