Establishment of ALS Care Services Program

(a) The Department of Human Services shall administer the West Virginia ALS Care Services Program. (b) The program shall provide for the following initiatives: (1) Care Services Coordination and Support – Ensures that West Virginians living with ALS and their caregivers receive disease education, specialized support navigating complex systems, individualized resource linkage, and ongoing compassionate assistance. This initiative improves well-being and safety while reducing the emotional and financial burdens of ALS and enhancing overall quality of life. (2) Assistive Technology, Medical Equipment, and Ramp Reutilization Loan Programs – Provides access to expensive but essential equipment for individuals with ALS and their caregivers. These loan programs significantly enhance safety, independence, and the ability to remain in their home and community. By reducing the costs of care on state and federal programs and promoting the reuse of ramping materials and equipment, this initiative also has a positive environmental impact. (3) Multidisciplinary ALS Clinics – Facilitates access to specialized multidisciplinary care that adheres to the highest clinical care and treatment standards. Research has demonstrated that multidisciplinary ALS clinic care extends life expectancy and improves quality of life. These clinics provide comprehensive family support, reduce the burden of care by addressing multiple needs in a single visit, and help lower healthcare costs for both individuals with ALS and state and federal programs.