42 U.S.C. § 287a–1
Office of Rare Diseases
United States · Title 42 — THE PUBLIC HEALTH AND WELFARE · Status: effective
Cite this
- Citation
- 42 U.S.C. § 287a–1, Office of Rare Diseases, United States, version 1 as recorded 2026-07-09, yourstate.us, https://yourstate.us/provision/475705
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Full text
There is established within the Center an office to be known as the Office of Rare Diseases (in this section referred to as the “Office”), which shall be headed by a Director (in this section referred to as the “Director”), appointed by the Director of the Center.
The Director of the Office shall carry out the following:
With respect to rare diseases, the Director shall serve as the principal advisor to the Director of NIH and shall provide advice to other relevant agencies. The Director shall provide liaison with national and international patient, health and scientific organizations concerned with rare diseases.
For purposes of this section, the term “rare disease” means any disease or condition that affects less than 200,000 persons in the United States.
Legislative history
The public laws that enacted or amended this section. Tallies are for the whole bill as it passed each chamber — often an omnibus covering far more than this provision — not a vote on this section alone.
- Rare Diseases Act of 2002House: no recorded tallySenate: no recorded tally
- National Institutes of Health Reform Act of 2006House: 414–2Senate: no recorded tally
- Consolidated Appropriations Act, 2012